Hi mate. I'm not a doctor at all but it seems you have some anxiety returning and though you were happy about weaning yourself off Zoloft, maybe returning to some form of SSRI such as Lexapro (escitalopram), Celexa (citalopram) or Prozac would be beneficial. Perhaps talking to your doctor about the side effects and dosage you were on will help them prescribe or try something different.
Regarding the diagnosis, it's more medical professional taking I'm afraid but I'd also suggest support groups and thinking about learning new ways of doing things early. Your diagnosis is a pretty rare one, so being in a community could be really helpful and have you get some good tips and tricks. When I was a kid there was a lad who I think had a similar diagnosis and would tilt his head up to look at you with his peripheral vision. It was a bit funny at first, but we got used to it.
Wishing you the best, mate